Thursday, March 31, 2011

Evaporated Cane Juice is Just a Fancy Name for Sugar

It takes me a long time to get my grocery shopping done.  Always has.  Want to know why?  Because I read labels.  Even before I started the MS Diet, I was a big label reader.  I've been organic for years and since having Ryann have really paid close attention to what it is that she and I are putting into our bodies. 

And now I've really notched things up.  Because keeping focused on recovery is my absolute priority I am utterly vigilant about making sure that what I eat is a)  within the guidelines of the diet and b) healthy and nutritionally balanced (this one is key as it would be very easy to eat Betty's scones and cookies all the time. Or eat just turkey and potato chips.  Or just grapes and water.  You get the point).

***and speaking of scones, I want the world to know that I baked a kick-ass batch of apple almond scones this weekend.  By myself.  I am a culinary God. ***

So anyway, here I am, a seasoned label-reader almost three months into recovery.  I'm thinking that I've got this whole 'what I can and can't eat' thing down pat.  I wake up every day and eat a giant bowl of gluten/sugar/dairy/soy/caffeine/alcohol/legume free cereal and start my day.  Or at least I did . . .

Until last week when I read latest issue of Nutrition Action over my morning bowl of cereal.  And learned that evaporated cane juice ( a common ingredient in my 'safe' foods) is actually just another name for sugar (definitely NOT a safe food). 

Wasn't I surprised to learn that my cereal, and many of the foods I've been eating that fail to list 'sugar' as an ingredient are . . . well, not so much free of sugar.  At all. 

I was perplexed.  Befuddled.  Confounded.  How could this be?  I quickly leaped online and did a bit of research.  Here's some of what I found:

I learned that many manufacturers are pandering to the health-conscious consumer and using alternative monikers for their sweetening agents.  These sneaky bastards use terms like cane juice crystals, dehydrated cane juice crystals, unrefined cane juice crystals, raw cane crystals, washed cane juice crystals, Florida crystals (a trademarked name), unbleached evaporated sugar cane juice crystals, crystallized cane juice, and unbleached crystallized evaporated cane juice. There are also products with such names as organic dehydrated cane juice, unbleached sugar cane, evaporated cane juice, and evaporated cane juice sugar.

I read all of this and was shocked.  Stunned.  Pissed off. 

You mean to tell me that a manufacturer can deliberately mislead me, a guy who ingests sugar at the peril of losing his ability to be mobile, just because they want to make their product more attractive to the 'health conscious consumer'?!?!?!?

How about us consumers who aren't merely 'conscious' of our health because we want to lose five pounds or because we are following the latest trend or fad diet or because we just want to be cool and hip? 

How about us consumers who *cannot eat sugar* because it will cause an extreme and detrimental physical reaction?

Manufacturers are jerks.  Well, maybe not all of them.  I'm looking forward to identifying and promoting those manufacturers that have integrity, honesty and quality. 

And until I find them, I want to make sure everyone is aware that for those of us with MS, simply reading labels isn't enough.  We've got to make sure that we understand each ingredient and what it is.  We've got to take matters into our own hands - take our recovery into our own hands - and educate ourselves.

I sure learned my lesson . . . anyone want half a box of gluten free/dairy free/soy free/caffeine free/alcohol free/legume free *sugar added* cereal?

"This is what you get, when you mess with us."

Monday, March 14, 2011

Sometimes He Makes a Grouchy Face

Ryann and Betty hijacked this week's blog.  I was banished from the computer room while they conspired and interviewed and hammed it up for the camera:

Betty:  Tell me about your Dad?
Ryann: Well,  I love him.

If you had to use only 2 words to describe your Dad, what would you say?
 He is the best.  He's the best hugger and the best at woodworking.  Snuggle night is my favorite. Because he's puffy and cuddly and warm.

Do you know that your Dad has MS?

What does that mean?
He has to take shots every morning. He can't walk very far because his legs will start really hurting. He has to eat good.  He can't eat some things. 

Like what?
Like chocolate.  

Would you miss eating chocolate? 

Do you know what MS is?
No.  I just know he has MS . . . you're writing down everything that I say! 

I'm trying to! Do you like being interviewed?
Yes.  Because it's fun.

Why does your Dad have to eat good?
Or else he will get sick or something.

What's it like when your Dad is sick?
One time someone had to come and watch me.  Because he couldn't watch me because he was in bed sick.

Do you think your Dad likes to eat good food?
Well I don't really know that but I think yes and no.

Why yes?
Because he likes your food [insert big grin from Betty] and it's healthy.  And he likes his food.

Why no?
Because sometimes I see him make a grouchy face when he eats healthy food.

Why do you think he wants to eat good food?
So he can start walking around and bringing me to the park and taking me and Abby [the Jack Russel terrier] for a walk.

What do you think your Dad thinks about having MS?
It's horrible.  

Because he can't do many things.  Like he might want to walk me to the park and have fun and take walks but he can't do it.  

But you think he would like to?

How do you think your Dad feels when he wants to take you to the park but his legs are too tired?
Horrible.  Because it really, really would make him hurt.

Do you know the word frustrated?
Yes.  It means that you're really mad.

Do you think your Dad feels frustrated?

What do you think frustrates him about having MS?
Once he walked me to the park and his legs hurt.

Do you know anyone else with MS?
No, maybe my Dad does, but I don't.

Do you have any advice for someone with MS?
No, not really.  Well, I would say to help by serving good food.

Why is good food so important?
So you can feel good and you can be the best at stuff.

Is good food just important for people with MS?
No.  It's important for everyone.

Do you eat good food?
Yeah.  I eat vegetables.  And energy food like yogurt.

What else should we talk about?

Have you noticed anything different about your Dad since he started eating healthy?
Yes!  He can walk better.

Why do you think he wants to get better?
So he can do stuff with me.

Why does he want to do that?
Because he loves me.

Do you love him?
Yes.  Of course!

Could you measure how much you love him?
No!  I love him too much!

What's your favorite treat in the whole world?
Lollipops and chocolate.

Which do you love more, lolli- 
My Dad!

What's something that makes you really happy?
My Dad.

Why?  There's probably a billion reasons.
I have too many and I can't pick.  Because he tucks me in at night.

Do you think your Dad loves you?
Yes, of course he does!

How can you tell?
Because he kisses me every night.

If you could whisper something really sweet to your Dad, what would you whisper?

"I love you . . . so much"


                  There's a party in my tummy
                  So yummy, so yummy . . .
                                             Yo Gaba Gaba

Thursday, March 10, 2011

Would You Care For Some Whine To Go With That Cold??

How was your week?   Mine started out kind of rough:

The day after my last blog post went up I woke up feeling like dirt.  My legs were numb, my vision was screwy, my joints ached, my focus was off.  The fatigue set in and didn’t let up (and let me explain – MS fatigue is a bit like walking around with two or three heavy, wet, wool blankets draped across your body.  Fun, right?!?).   I was a mess.

My first thought was “oh no – I’m having a relapse!”  Then I thought “oh no – I ate something that I shouldn’t have!” (even tho I knew that wasn’t the case, I was just so exasperated to be feeling like shit again after feeling so great for so long I was ready to tell myself anything).

I got Ryann off to school and was busy sitting around feeling sorry for my sorry-ass relapsing self when Betty called.  Almost right away she commented that I sounded stuffy and congested. 

“Yea,” I said, “Ryann’s had a cold for the past few days and now I have it . . . but more importantly, I woke up feeling like shit, I hope it’s not a relapse, I’ve been doing so well and now I’m so disappointed and maybe it’s something I ate but I don’t know I just hope I’m not going backwards waa waa waa”

Betty cut me off mid-whine and, in her usual succinct manner (did I mention she’s an attorney? She’s pretty keen with these things) asked if I thought maybe it was simply the cold that was causing an exacerbation of my symptoms.

I wanted to believe her.  It sounded reasonable.  It was more than likely the case. 

But you know, when you’ve lived with MS for so long, and when you are so used to your body just giving out and letting you down, it’s kind of hard to believe that “it’s just a cold” and you’ll “feel better in a few days”. 

Because with MS, when your symptoms set in, you usually don’t feel better in a few days.  And if you are lucky enough to actually have your symptoms subside months after they’ve started, they almost always leave some lingering reminder like incessant tingling, numbness, achiness, pain, loss of motion – you know, quirky fun stuff like that.

So as much as I wanted to believe Betty’s theory – and as much as I logically knew it made sense that whatever virus I’d caught from Ryann was probably the cause of my overall dirt-like status - it was just so hard to believe.  Could it really be that simple??  Could I just have a cold?

I took it easy for a few days, drank lots of fluids, dosed up on Vitamin D and good, healthy food and by the end of the week I was texting Betty “I feel freaking fabulous!”

Turns out I had a cold.  Turns out that I’m just like the rest of the human race and had a regular old, run of the mill cold.  Turns out that I didn’t have a relapse, I didn’t go backwards, my body didn’t give out on me and I did, in fact, feel better in a few days.

That’s pretty big.  Not much is simple when you live with MS.  But here I am, recovering from MS and I had a cold and it went away.  Simple as that.

Life is good.

"Life shifts up and down everybody knows it's wrong."
                                                                    --Skinny Puppy

Wednesday, March 2, 2011

A Day Late and a Dollar . . .

This blog post is a day late - and do you know why?  It's because I've been busy. 

And do you know why?  Because I'm a finish carpenter - among other things - and Spring is always a busy time.

Over the past few weeks, I've either been working in my shop or out on jobs.  And when I'm not doing either of those things, I've been working up estimates for clients in addition to running my second business, computer drafting, and getting started on my life-long goal of being an architect. 

I'm working 10+ hours a day in addition to putting in my Awesome Dad time with  Ryann - and my housekeeper's been on vacation for a month and the place still looks pretty good.  

Read that again.

Now read it a third time.

Did it sink in yet?

I am working 10+ hours a day, being an awesome Dad to my daughter and keeping up with my house. 

And do you know why?

It's because my body is recovering and I feel so freaking fabulous!! 

Two months ago, I wasn't working at all and now I'm working like crazy.  Two months ago, I didn't think I'd ever really become an architect and now I'm applying to the University of Penn (if you know anyone in admissions or the School of Architecture, please put in a good work for me).

I'm not saying all of this is easy - it's not.  At the end of the day I am definitely tired and need to sleep.  At the end of a couple of days I am wiped out and need to sleep a lot (which is why this blog is late - I was in bed about 3 minutes after Ryann last night.  There was just no way my brain or body was going to do anything more).   It isn't easy, but because I am recovering, it is all possible.

I've had some questions about the details of my recovery, so here you go.  Please note that the stuff I list here isn't even the tip of the iceberg when it comes to all of the perks MS has brought me - these are just the areas in which I've noticed the most dramatic improvement.

My left foot is no longer completely numb.  I can move my foot and toes freely and without pain.  When I first regained motion in my toes it hurt a good bit.  Not any more.

My right eye is getting better.  For a long time, the vision in my right eye was consistently blurry with the bonus of always feeling like there was sand in my eye.  The sandy feeling is not as bad and my vision is slowly getting better - and the blurriness is more intermittent now.

My energy level is through the roof.  Although I need to pace myself and make sure I'm eating often, I no longer feel like I need to nap about 15 times just to make it through the day.

My skin looks great.  Betty commented that I was 'glowing' after the first week of recovery, but now it seems everyone is noticing.  I've even had guys tell me that my face just looks 'healthy' (and for a guy to say anything, you know it must be obvious).  Of course, I can't help but wonder just how bad I looked pre-recovery . . . but I digress.

My mental attitude is phenomenal.  My optimism and belief that the world is a bright, wonderful place and that my future is awesome are infectious.  One of the fabulous side effects of MS is depression, which can really screw with your life.  Thankfully, I have never had issues with depression per se, but there have been periods of darkness.  Not any more.

So there you have it.  Your latest dose of Joe is posted and in your hands.  Have a fabulous week - I know I will!

Life is good!

Falling down, I've reached my highest line. 
I've got a good idea what breaks you makes you shine.
                          --The Catherine Wheel